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Do you know a NGLY1 patient?
If you know a patient with NGLY1-deficiency, or think you do, please contact us immediately.
You can reach us directly at
info@ngly1.org
NGLY1 Symptoms
Global Developmental Delays
Movement Disorder
Hypotonia
Alacrima/Hypolacrima (lack of tears)
Abnormal EEG
Elevated Liver Function
Microcephaly
Peripheral & Auditory Neuropathy
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2015
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February
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President Obama congratulates the NGLY1 community
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2012
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