Friday, July 18, 2014

NGLY1.org Facebook Launch

In 2012, we launched NGLY1.org as a resource to clinicians, a means of finding new N-glycanase  (NGLY1) deficiency patients, and a way to support their families.

Yesterday, thanks to the rapidly growing NGLY1 community, we launched the NGLY1.org page on Facebook to facilitate NGLY1 family-researcher interaction and provide support.

We invite everyone to join!  The page will be a public one, but we reserve the right to make it private if necessary in the future.

We will continue to promote N-glycanase deficiency, so patient families will be able to find the NGLY1 community and receive the same valuable support.

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